Thursday, March 8, 2012

This is my sweet wife Stephanie or "Steph" as she is known to all her friends and family. She has been battling MS for over 14 years now, being diagnosed with Relapsing Remitting MS in February of 1998. Since that time she has given birth to 2 healthy kids Allie 13 and Caelum will be 8 in May. She started using a motorized scooter when she was pregnant with Caelum, she didn't want to fall and hurt him, this is her personality in a nut shell, always thinking of others. I am always being told how amazing she is, always has a smile on her face and will stop to help and talk to anyone, kinda gets annoying sometimes cuz we are always waiting for her to get done visiting. She has since been diagnosed with Secondary-Progressive MS, she has been stable the last few years and just had an MRI done a few days ago. Her IV therapy has been doing it's job to help keep her stable but she still battles with symptoms from the previous damage to her nerve endings but as of now, no new lesions.
A few years ago we found out through friends from Ireland that the MS community in Europe has been doing studies on the blood flow to and from the brain in MS patients. They have found that for whatever reason it gets restricted in people with MS. So the proper flow to and from the brain is off therefore the brain has to adjust on it's own, which they think lesions could be the result. They since have been doing a procedure to help correct the blood flow by inserting stints into the jugular vein. We have heard amazing results from people that have had this done. Although it does not cure MS it helps to reduce many symptoms that MS patients suffer from each day.
We found out a month ago that there is a place in LA that has started doing these procedures. www.synergyhealthconcepts.com We called and received quick response from not only the office but one of the Dr.s. She was approved by them but unfortunately not by Steph's medicare insurance. MS is a wide spread disease and I am pretty sure everyone knows someone that struggles with it everyday. Somedays it can be pure hell to deal with and I am amazed at how my wife deals with it, truly amazing. She is always telling me it could be worse and that there is always someone out there that is worse off than her. She is right but that doesn't mean she shouldn't have the opportunity to have this procedure done, it would truly be a blessing.
I have been touched recently by friends and family that have asked how they can help and that is why I have decided to reach out and ask for help, which is so far from my prideful personality it is amazing. Thanks to all who have inquired to help, you are truly amazing friends and I love you from the bottom of my heart, I know Steph will too, she has no idea we are doing this. SHHHHHHH.

Thanks,
Brad

3 comments:

  1. Steph is amazing. She's really an inspiration. I'll be happy to help.

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  2. If you wish to help Steph, click on the "Steph" in white print at the top of this page, this will take you to the second page of the blog where you will find the PayPal button at the bottom. Thanks everyone.

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  3. Well just to update, Steph is scheduled to have the CCSVI procedure done next week. We fly down to LA on Monday the 21. She is very excited and nervous at the same time. We have paid the 1000 down to reserve the procedure and another 800 for airfare, as of now we are still about 2000 short of having enough. We learned yesterday that she will be on an anti-coagulate for 3 months, this med will cost 700 dollars. We feel so blessed to have such great friends and family and people willing to help. This has been a very humbling experience to see people so generous and caring for such a great cause. If you wish to help Steph and help offset the cost of this procedure you can click on her name at the top of this page and scroll down to the bottom and click on the PayPal button, or you can donate at any Wells Fargo branch. The account is Stephanie Bearnson Donations. Thank you all for your love and support.

    Brad

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